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Rare diseases


10 results

Rare diseases

Understanding the true impact of living with FOP
24 April 2023

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

A Life in a Day of an FOP person: from Empathy to Understand...
03 November 2022

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

What working in rare disease has taught me about supporting ...
27 April 2021

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

A new language inviting you to understand more about the rar...
24 February 2021

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Why 2021 is the year for R&D progress
13 January 2021

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Putting our purpose to the test: what we and the community a...
16 September 2020

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Ipsen in Rare Diseases: Why will fun feet help drive diagnos...
08 April 2020

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Celebrating Ipsen Rare Disease Day 2020
29 February 2020

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Ipsen and Blueprint enter exclusive agreement in FOP
16 October 2019

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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Rare diseases

Ipsen launches acromunity.com a website designed with patien...
31 October 2017

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced,…

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